ASGCT is committed to communicating scientific discoveries and clinical applications to patient communities and the public.

We recognize the critical role patient advocacy organizations and foundations play in developing treatments and helping those with a disease or disorder navigate the process of receiving gene and cell therapies. With that in mind, ASGCT is offering a limited number of complimentary registrations to members of certain groups in hopes of cultivating meaningful discussion, knowledge sharing, and relationships between the patient advocate audience and the clinician/researcher audience. 

Join us for the 28th Annual Meeting between May 13-17, 2025, in New Orleans, LA.

Criteria for approval

This opportunity is designed to expand access to the content and networking opportunities delivered at the Annual Meeting for non-profit volunteers, patient advocates, and individuals with a rare diagnosis. To register under this category, you must be at least one of the following:

• An individual with a rare disease or disorder that has research and/or treatment for a CGT underway
• A caregiver for a person with a disease or disorder that has research and/or treatment for a CGT underway
• A volunteer for a non-profit or employee of a small non-profit that is working to advance research and access of CGT treatments

Those who fall within this category must also display a level of engagement in patient advocacy activities, including:

• Legislative or advocacy efforts
• Provide support, education, or services to individuals affected by rare and/or genetic diseases
• Demonstration of a mission related to research and development for a rare and/or genetic disease

*ASGCT has discretion over the approval of applicants beyond the eligibility criteria. This program is not intended for medical or scientific research professionals, academic institutions, other professional societies, industry corporations, or governmental entities.   Some applicants may be better suited for registering at the non-profit/government rate.*

The application will require the completion of an online form that outlines the credentials to be considered for approval.   

Please fill out this form to apply for patient advocate registration.

Applications must be submitted prior to April 1st to be considered for complimentary registration to the Annual Meeting. A maximum of 2 recipients per organization can be approved. As applications are being reviewed, please allow 10 business days to receive a response on your application. Please reach out with any questions to ASGCT’s Advocacy Program Specialist, Lexi Starosta.